Meet our families
Inspired by the #HoldStill photography project lead by the Duchess of Cambridge, Patron of the National Portrait Gallery, we decided to create
'A portrait of our families during #lockdown 2020'.
Spirit, mood, hopes, fears and feelings are all clearly expressed in these moving images, but most importantly illustrated, is love and care. Our families are #shielding their loved ones during the #covid19 #coronavirus #pandemic.
Award-winning photographer, Asia Burrill, has captured these beautiful moments #throughtheglass via #socialdistancing.
The images not only show daily life for our families but also the #newnormal as our #helpersandheroes from the Northern Care Alliance #NHS group, wear full #PPE.
Pictured, is Anna Oddy, Children's Complex & Palliative Care Specialist Nurse, Anna was Joshua's nurse, she is a #JollyJosh trustee.
#APortraitOfOurNation #APortraitOfOurFamilies #ComplexMedicalNeeds #ComplexNeeds #SEND #PMLD #ConnectSupportThrive #InspireInclusion #Photography #photoshoot #portrait #Photographylovers #gastrostomy #tracheostomy #trach #tubielife #Rochdale #Charity #PhotographyProject
Meet some of our families and hear what they have to say...
Family A
'Family A' include Jade and Christian from Britain's Got Talent #SignAlongWithUs, who are our #JollyJosh Ambassadors.
Family B
This is my Beautiful daughter E*.
Sometimes I sit back & think how far my little solider has come.
Family C
As a family, dad was furloughed, and I started to work from home due to T* being classed as high risk and required to be shielded. T* has Down Syndrome and born with a hole in his heart which was repaired at 5 months old.
Family D
The garden is my favourite place. I love listening to the birds and my music.
Family E
I’m L*, I live with my Mummy sisters and brother. I am nearly 4 years old and I have cerebral palsy which means I can’t walk or talk yet.
Family F
M* is 10. Just before her first birthday, she was diagnosed with a rare chromosome disorder (inverted duplication deletion 8p). M* has complex physical and medical needs but that doesn’t define her.
Family G
We are a family of 4. Our children are L*, 7 and T*, 4. The week before lockdown T* was given the diagnosis of Autism on top of Sensory Processing Disorder, Language Delay and Global Developmental delay. He also has dyspraxic and ADHD tendencies.
Family H
I know its hard...
I know it’s hard, especially during this time. Timetables, routines, meeting with friends, coffee dates, lunch dates & strolls across the lake.
Family J
T* has a rare condition called glycogen storage disease- type 4.
Family L
Our beautiful sunshine who brings us sunshine through her smiles during lockdown.
Family M
This is us... Mummy, Daddy, two beautiful princesses and our fur baby Douglas.
Our two gorgeous girls are 3 and 4 and are both incredible miracles.
Family N
It was a shock when we received I*'s diagnosis, and as it's such a rare condition there is a lot unknown and many unanswered questions...
Family O
At just 11 days old I contracted meningitis and was very poorly but I am a warrior and I beat that horrible disease.
Family P
This is me being super cool with with my family in my favourite place at home.
Family R
I* is a loving and determined little girl, she doesn't let things get in her way and she is full of mischief.
