At present @ITV @Coronation Street are revealing a storyline for Jane Danson (Leanne Battersby) and Simon Gregson (Steve McDonald). This story of a #mito diagnosis became our reality on this day in 2017, just 8 days after Josh's 1st birthday, after months of incorrect ‘viral’ diagnosis’, hospital admissions and then confirmation of extensive brain damage. We arrived at ‘that day’ On this day, I remember being so very cold, my body went into shock and I couldn’t stop shaking.
Today Oliver is 6 months old! I have no idea where the time has gone, for most this is a simple monthly milestone, for us it's a sigh of relief... The past six months have, in truth, been very difficult, Oliver is loved and adored but he's been a very different baby to Sophie and Joshua due to terrible reflux and colic. We honestly feel as though we've been in a whirlwind, and with severe lack of sleep as Oliver has struggled to settle, unfortunately he hasn't been the most
Sophie, Joshua’s older sister started nursery just ten days after Joshua passed away, an extremely difficult transition for her and for me. Our attachment meant that in the rawest of grief we needed each other, therefore she only did very short sessions which developed with time. This week Joshua should have begun his nursery adventure, instead we mark two years since his funeral. I use the term ‘funeral’ loosely. If truth be told I was unable to give Joshua the funeral he de
Joshua and Sophie are now older siblings, their brother Oliver James couldn’t wait to make his arrival! On Saturday 6th July, Oliver James was born at 15:17pm after spontaneous labour which came as a huge shock to us all at 33 weeks plus 3 days. We are all absolutely besotted and overwhelmed with love, Oliver's arrival was an extremely emotional experience, more so than most births, due to the devastation of us having experienced #childbereavement. Oliver is currently on the
1 year…This very weekend was booked to be our wedding, a long weekend in the Lake District with our family and friends celebrating our marriage yet instead we mark a year since our dearly loved son passed away… How has a whole year passed?! One long year since I held my beautiful, brave boy in my arms, since I used his name in present tense rather than past, since I stroked his blonde hair and kissed his luscious full lips. A year to the day since I held him, provided his da
On this date 2017 (just 8 days after Josh's 1st birthday) we would be taken to the therapy room @Manchester Children's Hospital for our pre arranged meeting with Joshua's consultants, I knew then that it wasn't going to be positive news. I had thought that perhaps they'd explain that his disabilities would become more complex (if possible). I had no idea just how severe Josh's prognosis was, we were delivered the shocking news that Joshua had 'weeks if months to live.' On th